A fine memoir about a rare illness. The author has an autoimmune disease which begins by paralyzing your feet and slowly moves up your body, killing you if it gets to your diaphragm (so you can’t breath). As treatment she has all the blood in her body replaced every other day (!!!). This goes on at various periods for years, until she goes to a new doctor who prescribes her massive doses of steroids. This stops the problem but gives her profound depression.
It’s a pretty horrifying story, especially as it begins pretty randomly, with a head cold, in her early 20s, and then dominates the next ten years of her life. What I particularly enjoyed was the fact that she avoided giving it a clean ‘narrative’ – she writes it to us sort of in bits, as she remembers it, which I found very affecting. It was less factually true but seemed closer somehow to how real experience is.